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KMID : 0361620160510020139
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Journal of the Korean Orthopaedic Association
2016 Volume.51 No. 2 p.139 ~ p.144
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Quality of Life in Patients with Osteochondromatosis
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정원주:Jeong Won-Ju
홍남수:Hong Nam-Soo/박일형:Park Il-Hyung/서일:Seo Il/오창욱:Oh Chang-Wug/윤종필:Yoon Jong-Pil/경희수:Kyung Hee-Soo/김하정:Kim Ha-Jeong
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Abstract
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Purpose: The purpose of this study is to help predict the prognosis of multiple osteochondromatosis patients with the investigation of social function, pain, physical function and quality of life of patients.
Materials and Methods: Forty-five cases were diagnosed as multiple osteochondromatosis from March 1993 to June 2014. We performed a survey on pain, daily life, school or work life assessment of research and development-36. Forty-five people who responded to the survey completely were enrolled. Variable factors, including physical functioning, role limitations due to physical health, role limitations due to emotional problems, energy/fatigue, emotional well-being, social functioning, pain, and general health state were considered as elements related to quality of life. In addition, we investigated significant factors for multiple osteochondromatosis patients, and analyzed the survey by scoring. Related factors included age (over 18 years and under 18 years), gender, body mass index, operation, joint deformity, recurrence of disease, family history, the number of involved joints and the location of tumor. Statistical analyses were performed using SAS ver. 9.3 (SAS Inc., Cary, NC, USA). p-values of <0.05 were deemed statistically significant.
Results: Patients with a family history of multiple osteochondromatosis showed a significantly decreased result of assessment, physical function, vitality of life, social activities, and health state. In addition, there was a tendency of a poor influence in pain, emotional wellbeing, and general health.
Conclusion: The results suggest that family history is a significant factor influencing and predicting the quality of life. In other words, the developed patients in the household including patients with severe enough for the rest of the family to know have poor prognosis. Through this study multiple osteochondromatosis is a chronic disease having a profound impact on quality of life.
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KEYWORD
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multiple hereditary exostoses, quality of life, pain, family relations
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